Chasing Shelby Foundation


LONG. TODAY, I’M — SHELBY WAS JUST 19 WHEN SHE PASSED AWAY AND HER FAMILY IS HONORING HER MEMORY BY BRINGING AWARENESS TO HER DISEASE. WELCOME LADIES. SO GLAD TO HAVE YOU GUYS HERE. TELL US ABOUT SHELBY. SHE WAS A 19-YEAR-OLD COLLEGE FRESHMAN. FULL OF LIFE AND EAGER TO BE FRIENDS WITH EVERYONE. HAD A SMILE ON HER FACE. HAD A LITTLE BIRTH DEFECT CALLED SPINA BIFIDA. MADELINE: A KNOW A LOT OF PEOPLE HEARD THAT, BUT WHAT IS IT? IT IS A NEURAL TUBE DEFECT. IT USUALLY OCCURRED AROUND THE 28TH DAY, MANY WOMAN DON’T KNOW THEY ARE HAVING A CHILD AT TIME. THE SPINE DON’T CLOSE OUTLINE — ALL THE WAY AND IT CAN BE VERY MILD OR SEVERE. EIGHT BABIES DAY ARE BORN WITH SPINA BIFIDA. IT IS ONE THE MOST DISABLING BIRTH DEFECTS IN THE UNITED STATES. MADELINE: WHAT INSPIRED YOU GUYS TO START THE FOUNDATION? WE LOST SHELBY IN 2016. MOST GROW UP TO LIVE HAPPY LIVES. THIS IS TO HONOR SHELBY. WE LIVED AT CHILDREN’S FOR MOST OF OUR LIFE, WE FELT IN ORDER TO HONOR HER, WE HAD TO GIVE BACK TO THE COMMUNITY THAT BLESSED OUR LIVES EVERY DAY OF HERS. MADELINE: HOW IS THE CAR SHOW GOING TO WORK? THIS IS OUR THIRD ANNUAL CAR SHOW, IT IS ON THE PARK PLACE, FROM 10:00 TO 1:00. WE HAVE WONDERFUL VENDOR, WE ALSO HAVE FABULOUS SILENT AUCTION IS. OF COURSE MY FAVORITE, STEVE YOUNG, WE HAVE A SIGNED FOOTBALL FROM HIM. NOT TO MENTION A LOT OF RAFFLE ITEMS COMING OUT AND SUPPORT A GOOD CAUSE. MADELINE: ABSOLUTELY. YOU ARE A STUDENT LIVING WITH SPINA BIFIDA HOW DOES THAT FEEL? IT IS GREAT. I SEE A WILL THE OF CARS MADELINE: YOU ARE DOING A LOT OF THINGS RIGHT NOW, YOU ARE DOING A LOT OF BIG THINGS CAN YOU TELL US ABOUT THAT? RIGHT NOW I’M A FRESHMAN, I’M DOING WATER POLO. WE HAD A GAME TODAY, BUT I CAME HERE. WHAT ELSE ARE YOU DOING? VALLEY CHILDREN HOSPITAL TRACK AND FIELD. IN THE SUMMER SHE WENT TO THE ANGEL CITY GAMES WITH A LOT OF KIDS WHO ARE AMPUTEES OR HAVE DISABILITIES THAT COMPETE AGAINST EACH OTHER. MADELINE: THAT’S AMAZING. OUR FOCUS IS TO LET PEOPLE KNOW AND LET PARENTS KNOW THAT JUST BECAUSE THEY HAVE THIS DISABILITY DOES NOT MEAN THEY’RE HANDICAPPED FOR LIFE, THEY CAN HAVE A FULL, RICH, FULFILLING LIFE. SOMETIMES I TELL HER SHE IS NOT GOING TO BE ABLE TO DO SOMETHING BUT THEY ALWAYS DEFIED ODDS. THEY TOLD US SHE WAS NOT GOING TO WALK, THEY SAID SHE WAS NOT GOING TO KNOW YOU, SHE IS NOT GOING TO SURVIVE, BUT SHE OVERCAME ALL OF THOSE ODDS. IT IS INCREDIBLE, WE WANT TO BENEFIT THE FAMILIES THAT ARE BORN IN THIS VALLEY WITH THE DONATIONS TO THE HOSPITAL. THAT’S WHERE OUR FOCUS IS AND 100% OF THE PROCEEDS WILL BE GOING TO THE HOSPITAL. EVERY PENNY SPENT IS GOING DIRECTLY TO THE HOSPITAL. BECAUSE OF OCTOBER IS SPINA BIFIDA AWARENESS MONTH WE ALWAYS MAKE A DONATIONS IN OCTOBER. MADELINE: WHAT DOES IT MEAN TO HAVE THIS FOUNDATION AND HAVE PEOPLE BACK YOU UP FOR THIS? IT IS HEART WARM, THE CENTRAL VALLEY, IS A GENEROUS, LOVING, GIVING COMMUNITY. WHEN THEY KNOW THAT A CAUSE, TO BENEFIT CHILDREN THEY COME TOGETHER AS A GROUP AND THEY SUPPORT US. WE SO FORTUNATE TO HAVE THAT BACKING. MADELINE: TO BUILD OFF OF THAT, HOW CAN PEOPLE HELP? THEY CAN DONATE. THE DONATION IS THE BEST THING THEY CAN DO. ALL MONEYS GOING TO THE NNEURO WING OF THE ICU. BECAUSE THE TECHNOLOGY AND THE TREATMENT AND STAFF TRAINING, THEY HAVE THEIR OWN WING, THAT MONEY GOES THERE ALONG WITH THE SPINA BIFIDA CLINIC. THE BENEFIT FOR MOST OF THIS THESE FAMILIES. COMING TO THE CAR SHOW, BUYING A RAFFLE TICKET, SIGNING UP FOR A SILENT AUCTION. BUYING SOME FOOD P.M. MADELINE: WHEN AND WHERE IS THE CAR SHOW? IT IS AT PARK PLACE IN FRESNO, 10:00 TO 1:00. WE WILL HAVE GEORGE THERE TO MEET AND GREET. WE ARE JUST EXCITED. MADELINE: THANK YOU SO MUCH FOR JOINING US AND TALKING ABOUT

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